Well, I went the whole month of March without blogging about hemochromatosis, more specifically, my wife's hereditary hemochromatosis or HH. However, March brought good news on the HH front: The blood-letting has begun!
(BTW, I trust people "got" that the image which accompanied my February post on phlebotomy was the barber's chair from Sweeney Todd.)
No fancy graphics this time, but I am hoping to capture video of what happens when the phlebotomist draws Chey's blood, so read on. Early in March a hematologist prescribed a course of 4 weekly blood draws (part of the delay was the fact that Chey collapsed on the way to her first appointment with this doctor).
At this point, 2 of the 4 have been done. We don't yet know the effect on her iron levels, but I'm guessing there is still a long way to go. Why? Because the phlebotomist has to brace herself against the chair to draw the second and third vial of blood.
That's right, even though Chey has been fitted with a port to facilitate the process, the blood is so thick it is hard to suck out. As far as the phlebotomist, a.k.a. nurse-with-big-needle, is concerned, this is a likely sign of excess iron in the blood.
In the meantime, efforts to assess, fix, and/or compensate for, the damage that HH has done to Chey's endocrine system are ongoing. Unfortunately this is very hit or miss at the moment. Some days she feels almost okay, but many more days she feels extremely fatigued, emotionally dizzy, and prone to hot flashes of Biblical intensity. This emotional dizziness means going from frantically alert and in danger of sleep drepivation, to mordantly comatose with generalized body pain, with outbreaks of uncontrolled weepiness in between. In other words, no fun at all, not to mention a real strain on the washing machine.*
But we're not giving up home on the phlebotomy treatment. The hope is that reducing the iron in Chey's system will enable some of the damaged or under-performing organs to rally and return to normal. After all, this is the year of Hope.
Ed: Sorry if the washing machine reference was a bit obscure. It comes from the fact that Chey has to change clothes many times a day when she gets these soaking sweat attacks. Think of cartoon sweat, squirting from a person's head...it's like that only for real. I kid you not.